My wife and I found this on Amazon Prime streaming films. She bailed on it about 30 minutes from the end in a particularly difficult scene. It pulls no punches, we get to see exactly what a person goes through in the first few years after early symptoms appear and the diagnosis is made.
The subject is Steve Gleason who, after highly successful school and college athletics found himself playing standout pro football for the New Orleans Saints. He was rough and tough, also very intelligent, and seemed to never quit. At age 34 he started having some unusual symptoms and shortly was diagnosed with ALS.
(As an aside I just watched 'Concussion' which deals with CTE caused by head trauma that long-time football players experience so I immediately wondered if it could also trigger ALS. The research is ongoing but so far experts in the fields have no evidence of a link.)
Most of the film takes place in New Orleans, Steve married Michel Varisco, she of course has a key role in his life and in this documentary. I used to live in the New Orleans area and I recognize Varisco as a genuine family name for that area. Michel was always an energetic and happy person, and for the most part remains that way, but as the film progresses you can see the stress she experiences.
When Steve received his diagnosis and his prognosis, not good, he and Michel were determined to have a child, and the result is a boy, Rivers, who it seems inherited most of his physical features from his mom. Much of the film is Steve leaving video for his son so that he will be able to see dad as he was before being debilitated by the disease.
Plus the film covers Steve's work to form the foundation that among other things raises money for ALS research, and to lobby Congress for proper medical coverage for ALS victims.
It is not a pretty picture, to see a formerly elite athlete deal with his quick degeneration into helplessness, but it does show how one can deal with it, and perhaps a reminder to all that life is precious, always live it as if today were your last. Don't take life, health, and relationships for granted.
Steve's dad, Mike Gleason, also had a key role as related to father-son relationships.
The subject is Steve Gleason who, after highly successful school and college athletics found himself playing standout pro football for the New Orleans Saints. He was rough and tough, also very intelligent, and seemed to never quit. At age 34 he started having some unusual symptoms and shortly was diagnosed with ALS.
(As an aside I just watched 'Concussion' which deals with CTE caused by head trauma that long-time football players experience so I immediately wondered if it could also trigger ALS. The research is ongoing but so far experts in the fields have no evidence of a link.)
Most of the film takes place in New Orleans, Steve married Michel Varisco, she of course has a key role in his life and in this documentary. I used to live in the New Orleans area and I recognize Varisco as a genuine family name for that area. Michel was always an energetic and happy person, and for the most part remains that way, but as the film progresses you can see the stress she experiences.
When Steve received his diagnosis and his prognosis, not good, he and Michel were determined to have a child, and the result is a boy, Rivers, who it seems inherited most of his physical features from his mom. Much of the film is Steve leaving video for his son so that he will be able to see dad as he was before being debilitated by the disease.
Plus the film covers Steve's work to form the foundation that among other things raises money for ALS research, and to lobby Congress for proper medical coverage for ALS victims.
It is not a pretty picture, to see a formerly elite athlete deal with his quick degeneration into helplessness, but it does show how one can deal with it, and perhaps a reminder to all that life is precious, always live it as if today were your last. Don't take life, health, and relationships for granted.
Steve's dad, Mike Gleason, also had a key role as related to father-son relationships.