I have spent my career seeing the end stages of ALS patients. Setting them up so they would be comfortable at home. Taking care of them in the hospital. I think ALS and Myasthenia Gravis are 2 of the scariest syndrome/diseases to have.
There are a lot more scary ones that don't make it to adulthood.
This documentary was raw and gritty. And was not wrapped up in a bow. The fears, insecurities, relationship issues of the spouse as the caregiver etc...
I cried.
Steve Gleason has given the world a hard look at debilitating neurological diseases.
May God bless him and his family.
I sincerely believe there is no real lesson in suffering and dying a lingering death. Or in dying young.
I believe this family made a difference. With grace and dignity.