A thoroughly emotional account of what life is like for those living with EDS; an important documentary to raise awareness and educate on a condition which is hugely mis and underdiagnosed.
Lara is inspirational and the documentary is deeply moving. Featuring interviews with those who have lost family to the vascular type of EDS, and those whose lives have been damaged by a lack of knowledge and acceptance of the condition by the medical profession - heartbreaking and honest.
It is shocking to hear what some members of the EDS community have had to endure to finally get to a diagnosis, and how, with the right medical team and acknowledgement of the condition, their lives could have been very different.
Lara is inspirational and the documentary is deeply moving. Featuring interviews with those who have lost family to the vascular type of EDS, and those whose lives have been damaged by a lack of knowledge and acceptance of the condition by the medical profession - heartbreaking and honest.
It is shocking to hear what some members of the EDS community have had to endure to finally get to a diagnosis, and how, with the right medical team and acknowledgement of the condition, their lives could have been very different.